Overcoming Patient Recruitment Challenges in a Pivotal Rare Disease Study

VRMM Stage: Optimization

Summary

A privately-owned biotechnology company, backed by over £270M in private financing, was running a complex global Phase 3 rare disease study with strict inclusion criteria.

Nearly a year into recruitment, only 45 of 150 sites were activated and just 7 of 225 patients enrolled.

With increasing board concerns over trial feasibility, Seuss+ was brought in to stabilize recruitment and restore confidence in the study’s success.

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increase in monthly patient recruitment within 3 months

patients recruited per month sustained for 18+ months after engagement

saved in sponsor budget through contract renegotiations

What Seuss+ Delivered

Targeted Recruitment Intervention & CRO Performance Reset

Seuss+ worked directly with sponsor management to implement a structured action plan, improving site activation efficiency, accelerating recruitment, and renegotiating CRO accountability.

The Risk/Challenge

M

Significant delays in site activation and patient enrollment

M

Limited visibility of site-level communication and activation bottlenecks

M

CRO accountability gaps under existing contracts

M

Board concerns over study feasibility and impact of slow recruitment on milestones

The Results

N

10x increase in monthly patient recruitment within 3 months

N

6–11 patients recruited per month sustained for 18+ months after engagement

N

£5M saved in the sponsor’s budget through renegotiated contracts

N

Board confidence in trial feasibility restored; milestone risks significantly reduced

How We Helped

Recruitment Gap Analysis: Reviewed patient enrollment and site activation processes, attended Investigator Meetings, and conducted interviews to identify bottlenecks and risks.

3-Month Action Plan: Implemented targeted solutions to address site activation inefficiencies and accelerate patient recruitment.

Clinical Study Plan Revision: Updated tools and processes to increase sponsor visibility on site-level communication, timelines, and resource allocation.

Contract & Change Order Negotiation: Amended contracts and renegotiated CRO terms to improve accountability and performance.

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